Yup, that is right. We have 5 appointments this week so I will now be going to Children's for the next three days. How wonderful is that? If anyone has any clinics this week, give me a shout and let me know. I will probably be there when you are.
So anyways, this is an update since yesterday.
Yesterday Charlie came down around 1:00 and I left and went to work for about 4 hours working on more paperwork. This is definitely a never ending project. Then I came home last night and made beef enchilada's and then it was off to soccer practice for Coltan.
Carson didn't eat very much or drink very much as well. I will need to change out his NG tube. He has actually done very well with this one but now the port won't stay closed. Have any of you had a problem with that? I'm guessing it is from pulling the cap off and hooking the pump up and then pulling that out and putting the cap back on. So I'm holding off and thought I would take it off later tonight and that way I can give him a nice relaxing bath and then try to reinserting a new one after that.
Also, last night I had a wonderful conversation with Charlie. See his "girlfriend" doesn't want to talk to me on the phone but she has a huge interest in my blog. Why is she reading my blog???? Anyways, maybe I need to clarify the awesome massage that I got. It was a harmless massage that was more Carson giving it than anything else. So if she could kindly understand that Carson is a very sick child and he needs both his mommy and daddy, I would greatly appreciate it. She is so insecure with her relationship that I got a phone call last night from Charlie basically saying that he cannot come visit his son at my house because it is to much stress on Andrea. So here we go again. I guess the needs of a immature, selfish girl who has no idea what it is like to have a child is way more important than my sons health. Also, since Charlie, Andrea, nor I hold a MD license, lets not try to go against what the doctor says. I guess some people do not realize that I haven't been out of my house since Nov 1st and while some people are out drinking in bars, eating out every night of the week, hanging out with friends, WORKING, going out of town all the time hunting, I'm stuck here in my house with a lot of sleepless nights, looking after my sick child. So what, because it isn't what she wants, I should just ignore the doctor and take Carson to Charlie's house just to make her happy??? Life hasn't been very easy for me lately and I'm certainly not going out of my way to make hers easy.
I would really like to trade Andrea for her set of problems for mine any day of the week. Andrea has a job, and her only responsibilities are paying her rent, utilities, and worry about what goes on with Charlie while he is down here helping me out with my son. Do you know what I sit around and think about? I pray that everyday when we wake up that Carson will not pull his NG tube out and the tape sticks on his face for another day, I worry that Carson will end up not eating and drinking again, I worry about if Carson can breath all day without having another asthma attack, I worry that the staph infection that has been confirmed in his bloodstream doesn't cause more damage like on his kidneys, heart, and brain. I worry about his heart and I pray that it doesn't stop beating. I pray that when my son passes out and goes unresponsive, he wakes up and comes around. So call me offensive when I say this. I just think that when all you have to worry about is petty stuff, grow up and get a life.
Charlie informed me that since I made things bad for him and her, he is done coming down to see his son and is done giving me any money to help me out with Carson. So Andrea, if you feel like your needs are way more important than my sons health, then you go a head and keep him all to yourself. Carson will be better off if this is the unstable environment that your choosing for both of them.
Don't you think that if I could take Carson out, we would have gone to Cody's birthday party? Or how about the fact that there has been to out of town tournaments that I wasn't able to go with my boys and enjoy watching them play soccer? Or maybe the fact that I haven't seen my boys play soccer in about two months? See this home bound started in Oct and I didn't even know that you had been with him until Dec 7th. So what, I planned all of this out 5 weeks ahead just in case?
Since you decided to read my blog and cause stress between Charlie and I and put a strain on his relationship because of your insecurities, I have no choice but to put this out there on my blog. After all, this is my blog and I can write what I want.
To everyone that are loyal to me and are reading this, I'm sorry that your having to read it. I'm also very frustrated that Carson's father is making very poor decisions. He would like to call the doctor and talk to her himself. She knows that I have been sitting at home everyday with my son and she feels like having him in ONE stable environment is what he needs. Why is it that everyone in this world understand this but two people?
So on with his doctors appointment. We went to see his primary today and the staph has been confirmed in his bloodstream. The culture does show that the Bactrum (sp) is sensitive to this strain so we will finish his last three days and then he has given me another script for the same antibiotic for another 10 days and then we will reassess once again. So I guess that is good news but he would have felt better if it would have drained so that the concern of it staying in his tissue and then seep into his bloodstream wasn't a possibility. So we will keep our fingers crossed.
We have four more appointments this week so I will keep everyone updated on those appointments as well. Our first hurdle is passing with flying colors with the cardiologist. Then his pulmonary doctor called today and she had time to sit down and look at his charts and she wants him in this week as well. So as usual, this will be another long week with a lot of appointments. I'm praying that we do find some answers and can get him on the mend. Oh how I wish all I had to worry about is what I want to wear today and what restaurant sounds good to go eat at.
Cross of our Lord Jesus Christ
2 hours ago