Sunday, June 27, 2010

Prayers needed.....

Hello all of my good bloggy friends. I just wanted to hop on here and give you a quick update.

Life has been really good this summer. Then June came. haha We had a lot of rain come down earlier this month and it ended up flooding the shopping strip that one of the salons are in. We were down for a day but that is lucky considering some business are still closed.

Carson has been doing really well without the feeding tube. We thought we would pull the tube and see if we can get him to eat orally BEFORE doing the permanent G tube. His asthma seems to be under control for the first time since April/May. But this week he has been running high fevers and throwing up. I took him to the doctor and he probably has strep so he is on a Z pack for 5 days.

Cody was at soccer camp Thursday and said that when he went to sprint he felt something pop in his hip. He has a fracture in his hip and the bone has pulled away from his muscle. So he will need to stay on crutches for 2 weeks and then put some weight on it after that. He has a doctor appt in 3 weeks to see if he needs physical therapy or worse

Then if that wasn't enough, my mom called and said they took my dad to the hospital. He was later transferred to another hospital and is currently awaiting to have bipass surgery. He had a mild heart attack and has at least 3 areas where his blood isn't flowing correctly. So I have spent a lot of time at the hospital over the last few days.

Coltan, well so far so good! He has helped me in the middle of the night when I'm up with Carson and helped me today with the boys so that I could leave and spend time with my dad at the hospital. I'm so proud of him for stepping up and being responsible in a time of need.

If you could keep my family in your thoughts and prayers that would be sooooo wonderful.

I will hopefully have more info tomorrow on my dad. They haven't found a surgeon until Monday so he is in ICU and has a nurse with him 24/7 until then.

Sunday, May 9, 2010


Happy Mother's Day to all of my great bloggy friends. I hope everyone is having the best day. I have had a great day so far. I have my three boys and were all hanging out, what more could I ask for!

Thursday, April 15, 2010

Hello strangers....

Wow, what a month. It has been a wild and crazy month in my household as usual. So where should I start?

We left town on March 28Th and I literally got my computer fixed and back the day before. My computer had over 45 viruses on it and thank goodness I had all of my pictures backed up except for Christmas, Cody's b-day, Coltan's b-day and few after that. But my computer guy is the best and recovered ALL of those and they are backed up as well! So with that said, that is why I haven't been posting for so long.

Me, just been hanging in there and keeping busy with soccer and Dr appts and trying to stay well. I have strep throat and when your taking care of others with it, no fun at all.

Coltan, well he has been driving a little bit and has probably added some grey hairs on my head. Thank goodness for hair color. LOL We were going to his soccer practice one day and I pulled over to let him drive and he did okay. Gotta work on his "going around curves" more smooth. After we pulled up to his fields, his coach was behind us and said to him, well that explains it, I thought I was following a drunk. I'm sure the more practice he gets, he will improve (I hope).

He has had 4 soccer games since my last post. They have won 2, tied 1, and lost 1. His next tournament is in a couple of weeks.

Coltan has also been out of school since Monday due to strep throat. Yup, we actually ALL have it so it has been fun.

Cody, he has also been out of school due to strep. He has been keeping me the busiest with soccer. We actually went to Dallas March 28Th-April 5Th. This tournament was the first international tourney we have ever played in. It was a really great experience. Our team really isn't healthy right now and we didn't advance but for having several boys out, we actually played really well. We currently have one out with a broken ankle and another boy broke his wrist in Dallas. We have one that recently had hip surgery and another that is only playing partial games due to an injured back. Then we had 3 more that flew home in the middle of the tourney because they had MAP testing at their schools. So by Friday our 18 man roster, we had only 13 boys playing. After the tournament, we drove to Ft Worth and spent Friday and Saturday there and ended up having lots of fun. We took in a rodeo, went horse back riding, and rode a steam engine train. Of course I have lots of pictures and will try to down load soon.

Cody was in another tournament in Kansas City last weekend and they played really well. We played a team from Topeka and won 3-1. Next we played the number 1 team from South Dakota and beat them 9-0. Then we played a very good team from Arkansas and lost 1-3. Although a boy was off sides on the second goal and our goalie really did deflect the ball on the third. But Cody got the ONLY goal and all I can say is MOMMY WAS PROUD. It was a sweet goal! We finished that tournament in 2ND place. Nice job boys.

Carson, well he just turned 4 on April 7Th! My baby is a big boy now. I cannot believe how the time flies. He ended up having a great week of birthday parties and we still have a few more things planned but waiting for him to get better.

We came back into town around 5:30AM Easter morning.....very long 8 hour drive with no sleep and a nice sunburn........and on Monday Carson was showing signs of asthma. So off to the doctor and back on prednesolone for 5 days. Now this makes it a problem when he is meeting with the surgeon on April 6th for his up coming surgery on April 12th for the permanent feeding tube. It is now off the books till we can get him ALL better. Oh and my mom is very happy about that.

So we celebrated his birthday last Wed at Waldo Pizza with some of the family. I had some other fun things planned as well but needed to wait til last weekend, and he is still waiting as well.

Friday Cody had a soccer game from the tournament and Carson's asthma was so bad that we ended up giving him a breathing treatment through the nebulizer in the car on the way home. Saturday his asthma was just as bad. Sunday we had planned to go to Chuck E Cheese, and to some stables for him to ride a horse and he ended up with 104.1 temp. He was really bad. I had to take all of his clothes off and lay cold wash clothes on him and he was so sick that he didn't even care. I finally got it down to 102 and we pretty much stayed up all night doing medicines and breathing treatments.

Monday I took him, Coltan, and myself to the Dr and yup, Cody gave us all strep as well. So he is doing breathing treatments with Combivent for the next 5 days 6 times a day. Then after that he will go down to Xopenex for 2 1/2 more weeks 4 times a day. He is also on a strong antibiotic for the next 10 days.

Carson also had his Pulmonology appt today at Children's and with everything going on, we are thinking about trying the Advair again. This is the inhaler that he took over a year ago and he started having the syncable episodes. So I told her that if I can't get a handle on his asthma over the next couple of weeks, I will call her and have her call it in. She also discussed with me doing the fundo-placation that I decided against. She thinks it would be a great idea to have that done as well because she feels that his acid reflux is probably a good part of Carson's problems where asthma is concerned. So now I'll be doing some more thinking about that. We will be scheduling another sleep study in the next 3-6 months as well as blood work to check his ferratin level and iron level again. Other than that, he looks great. LOL

So here is to another very long post but I think we are pretty much caught up now. I hope to catch up with everyone's blogs very soon. I miss reading everyone's blogs. Not having a computer for so long was like missing a lifeline!

Hope everyone has a great Thursday......

Thursday, February 25, 2010

Long overdue......

We just wanted to drop in and say hello to everyone. I have been without a computer for a while. My computer has a virus on it so it is in the shop getting fixed.

So what has been going on???? Well most exciting news is that Carson is POTTY TRAINED!!! I had a lot of errands to run Tuesday and went ahead and put him in a diaper. We were gone for over 5 hours and the first thing I did when we returned home was take his diaper off. It was DRY. He has been doing awesome and to reward him, we went to Wal Mart and picked out some new underwear. He choose Cars and Thomas the Train.

Carson went to the doctors a couple of weeks ago and we found out from the scales that he hasn't gained one ounce in 5 months.....sigh..... So they are really starting to push for the feeding tube through the tummy. I guess I have been in denial thinking that we would get over this hump. He did grow a couple of inches taller so he went from 20-25% to about 12%. So I have surgery scheduled for after his 4th birthday in April but it isn't 100% certain that I'm going to follow through with it. I just have a lot to think about and a lot of praying to find the right answer.

He also had some blood work done. The first one is for his iron level. The iron went up which was great news but his ferritan level was still very low. The way it was explained to me is that Ferritan is a protein that stores iron and releases it in a controlled fashion. 30% of your iron is stored in either your spleen, liver, or bone marrow. So we had a follow up and did a CBC to check out his counts. This has been kind of scary. This could be a sign of something very serious or something simple like a vitamin C deficiency or restless leg syndrome. So please keep Carson in your prayers over the next few weeks while we make sure his organs are working correctly and rule out the bad things.

His other blood work was to test the gases. I'm not exactly sure what this one was. I know that if he scored between 250-300 it meant his Nexium was working well. The good news, he scored a 268. So that means that we will probably rule out the Fundoplacation. YEA!!!!

He is still going to OT. We have missed a few weeks here and there because of snow, ice storms, and there was a couple of weeks where we were sick one week and the therapist was sick one week. Apparently the road Nancy lives on never gets plowed so every time is snows, she has to cancel because she cannot get up her street.

We have also just recently discovered that when Carson does eat, he is storing his food in his cheeks. We also discovered that he has a under sensitive gag reflux which doesn't help with the vicious cycle of his aspirating. So we are still working with his sensory process disorder as well as his oral for eating.

Coltan has been having a rough time with driving. He turned 15 in Jan and we have had a rough winter. I'm not ready for him to learn to drive, let alone, drive in crummy weather. He has done the simple going out to the parking lot and pulling the warm car up for Carson and I. LOL He hasn't been very active with soccer. They played futsol for the winter and he is just now getting into the Mon/ Wed practices.

Cody hasn't done a whole lot either. He has his indoor soccer league and one day a week practice. Thursday is the only day that I have all three boys and we don't have any soccer, so we try to have a nice family dinner or movie night or do something with all of us.

I have taken lots of pics and as soon as I get my computer back, watch out. Haha We did have an ice storm over the weekend and I took some pictures. It was a challenge to drive in but the next day the sun came out and the ice was still in the tree branches. It really was pretty to LOOK at. But again, this has been one of the worse winters that I can remember and I'm so ready to Spring to get here!

Sunday, February 7, 2010

Meeting a blogger!

Okay, I'm so behind on blogging but hey, what's new? Haha After the new year I was so happy that I got to meet a blogger buddy and her husband. Their names are Ryan and Lindsey Ebright. They are such a cute married couple and are always having fun.

I was googling something one day on a card game called Canasta and her blog popped up. Not only does she love to play the game, she also grew up in a suburb of Kansas City. I left her a comment about canasta and we have been blogging buddies every since. Her husband and her have actually relocated to Texas so I was really honored that they took the time out of their family time to come meet us.

So we decided to meet at my mothers house and have a Canasta showdown. My mother has played the game for about 30+ years with 7 other woman and currently they still have 6 of the original ladies playing. I have been brought in to sub when one can't make it. So just to be fair, we split up with Ryan and Lindsey and of course Ryan wanted my mom and her 30+ years experience to be HIS partner. It's okay cause we ended up losing but not that far behind.

I'm going to be taking Cody to Texas in March and we are hoping to all get together while we are down there. Oh and Ryan, be ready, we won't be so nice to you next time. LOL

So of course Carson felt the need to be in the pictures with us. Lindsey and I
Aren't they the cutest couple you have ever seen? And not only do they have looks, they have great personalities. You two had me laughing the whole time.
I was upset that for some reason the only pics with my mom came out dark. So here is the best of the 3 that I had. :-(

Lindsey and Ryan, you two are welcomed back to our house anytime. Thanks again for sharing your limited time with us. I had a great time meeting you guys in person.

Saturday, February 6, 2010

Scenes around Chicago

Here are a few more pics of Chicago. This was some of my favorite places to visit when I'm there.

This is the Navy Pier. It is a lot more fun in the summer when they have more outdoor things to do. It has a lot of specialty shops and unique restaurants. It is a great place to go to get a Chicago souvenir. It also has a very large ferris wheel and I thought I got a pic but did not. The all famous Hard Rock. I have eaten here but it was at least 5+ years ago.
This is a really cool McD's. It is 2 stories and has a oldies theme inside.
They have really good hot chocolate on a cold day.
The famous clock that my family stands in front of to get a pic.
This was inside the Navy Pier. This is the first time I have seen the Thomas the train there. It was 2.00 a ride and it lasted about 5 minutes. I should have brought a book because he stayed on there for a very long time.
All the times I have been to Chicago, I have never eaten here. But we had to take a pic cause of my little Pork Chop. Has anyone been here? Let me know if it was any good.
This is the famous Billy Goat's. It was always on Saturday Night Live because of their slogan. If you ask for fries with your burger they say "no fries, only chips".
I finally took a picture of Coltan.....Thanks Coltan. I wished I took more of him but he was never with me. He was shopping on Michigan Ave with my mom where it was a lot colder.
My two sweet boys. (Sorry Cody, you were playing soccer instead of shopping)

Thanks for taking the time to walk through our fun trip to Chicago. It is a fun place that we always enjoy going to. Hopefully next time I go, I have all 3 boys, and Carson has outgrown all of his problems. No tubes, no monitors, no oxygen......

Friday, February 5, 2010

Sky Deck AKA Sears Tower

The last day we spent in Chicago, Carson and I went our own way after breakfast with the family. First stop was The Sky Deck. We walked part of it and then took a cab the rest of the way. It was really cute, every time we got into a cab, Carson would tell the driver to go straight, take a right, then a left....and so and. He thought he was giving directions to all the drivers. Then I would have him pay the cab fare and he just thought he was soooo cool. LOL

These towers here were Coltan's favorite. If you notice the bottom part of the tower is the parking garage and the top part are the condo's. Depending on what floor, these condos were 300-1 million. At least that is what a cabby told me. A quick picture of Carson and I.

Every time that we go to Chicago, we always get a picture of the building with the clock. There is a bridge you can cross and we take the picture with that building in the background. For some reason, I tried several different pictures and they all came out dark. :-(

This sign is a landmark. This was about where we stopped for a cab. Carson was getting to cold and I didn't want to jinx it.

This is a picture of the Shed from the Sky Deck.

This was the Chicago Planetarium. It was okay. Not really for Carson so we ended up not staying very long. I think it would have been better for Coltan. I thought it was kind of cool though.

Another view from the deck

We went to the Planetarium Sunday evening before heading back to KC and this was the view from the parking lot.