Thursday, August 28, 2008

Baby Elli in need of lots of prayers!!!

Hey everyone, this is just a quick post for everyone. I have a new blog site listed and it is Elli Reed. Elli was born a week and a half ago and she has Congenital Diaphragmatic Hernia. Cassie and Brian are from Maryville Missouri and when Cassie was around 20 weeks pregnant, this was discovered. She delivered at St. Lukes Plaza and then Baby Elli was transported to Childrens Mercy. She was placed on the ECMO and now the doctors have opted to go ahead and perform her surgery while still on it.

The surgery to relocate a lot of her organs is scheduled for today. Would everyone please visit Brian and Cassie's site and let them know that we are all praying for them and Baby Elli. I know that they need all the support that they can get. After all, who best to give them that then all of my good loving parents that I visit everyday!!

I will blog later. I want this post to be dedicated to the Reed family today.

Love all,



melissabeth said...

Thank you so much for sharing this- my heart is so heavy for families going on ECMO as we know how stressful that is- I will visit her website- thanks so much for visiting ours as well. I was so encouraged by you! We are praying for you and your sons, too- your poor little kiddo having to go to thickened liquids, I think that would be tougher once they were used to not having them. Love to you and your family!! Melissa Adam :)

Pam said...

Oh my heart goes out to them. Rhett was born with this as well, but he actually didn't have any of his organs come up and out of the hole until he was 16 months old, which for us was nothing short of a miracle, and for the medical world a rare event.

Had he actually had the organs in his chest when he was born he would have died with his heart condition on top of it.

(Of course when they did the surgery at 16 months to correct it, was when he was overdosed so we almost lost him anyway.)

Okay, I am rambling I need to go to bed, but please let this family know that they are in my prayers.


CHERUBS - The Association of Congenital Diaphragamtic Hernia Research, Awareness and Support said...

Hi all CDH families,

Someone just sent me this link to introduce me to you. I will try to keep up with your blogs and your cherubs. If you need anything - information, to talk, etc - please know that CHERUBS is here for you. We have a huge CDH family and our members are so supportive and ready to help whenever we can. Please feel free to contact me anytime!

mom of Shane (1/28/93-9/11/99) LCDH x 6, multiple complications and birth defects

CHERUBS CDH Support Group -

CDH Research -