Thursday, February 25, 2010

Long overdue......

We just wanted to drop in and say hello to everyone. I have been without a computer for a while. My computer has a virus on it so it is in the shop getting fixed.

So what has been going on???? Well most exciting news is that Carson is POTTY TRAINED!!! I had a lot of errands to run Tuesday and went ahead and put him in a diaper. We were gone for over 5 hours and the first thing I did when we returned home was take his diaper off. It was DRY. He has been doing awesome and to reward him, we went to Wal Mart and picked out some new underwear. He choose Cars and Thomas the Train.

Carson went to the doctors a couple of weeks ago and we found out from the scales that he hasn't gained one ounce in 5 months.....sigh..... So they are really starting to push for the feeding tube through the tummy. I guess I have been in denial thinking that we would get over this hump. He did grow a couple of inches taller so he went from 20-25% to about 12%. So I have surgery scheduled for after his 4th birthday in April but it isn't 100% certain that I'm going to follow through with it. I just have a lot to think about and a lot of praying to find the right answer.

He also had some blood work done. The first one is for his iron level. The iron went up which was great news but his ferritan level was still very low. The way it was explained to me is that Ferritan is a protein that stores iron and releases it in a controlled fashion. 30% of your iron is stored in either your spleen, liver, or bone marrow. So we had a follow up and did a CBC to check out his counts. This has been kind of scary. This could be a sign of something very serious or something simple like a vitamin C deficiency or restless leg syndrome. So please keep Carson in your prayers over the next few weeks while we make sure his organs are working correctly and rule out the bad things.

His other blood work was to test the gases. I'm not exactly sure what this one was. I know that if he scored between 250-300 it meant his Nexium was working well. The good news, he scored a 268. So that means that we will probably rule out the Fundoplacation. YEA!!!!

He is still going to OT. We have missed a few weeks here and there because of snow, ice storms, and there was a couple of weeks where we were sick one week and the therapist was sick one week. Apparently the road Nancy lives on never gets plowed so every time is snows, she has to cancel because she cannot get up her street.

We have also just recently discovered that when Carson does eat, he is storing his food in his cheeks. We also discovered that he has a under sensitive gag reflux which doesn't help with the vicious cycle of his aspirating. So we are still working with his sensory process disorder as well as his oral for eating.

Coltan has been having a rough time with driving. He turned 15 in Jan and we have had a rough winter. I'm not ready for him to learn to drive, let alone, drive in crummy weather. He has done the simple going out to the parking lot and pulling the warm car up for Carson and I. LOL He hasn't been very active with soccer. They played futsol for the winter and he is just now getting into the Mon/ Wed practices.

Cody hasn't done a whole lot either. He has his indoor soccer league and one day a week practice. Thursday is the only day that I have all three boys and we don't have any soccer, so we try to have a nice family dinner or movie night or do something with all of us.

I have taken lots of pics and as soon as I get my computer back, watch out. Haha We did have an ice storm over the weekend and I took some pictures. It was a challenge to drive in but the next day the sun came out and the ice was still in the tree branches. It really was pretty to LOOK at. But again, this has been one of the worse winters that I can remember and I'm so ready to Spring to get here!

9 comments:

Lacey said...

You know,even though Jax had a NG since birth, and took nothing by mouth after 4 months on the vent. I was still iffy about the g-tube. But I promise when its done it will be fabulous. Its so easy to put in, usually they can go home the same day, and its hidden under his clothes. No more shoving a tube down his nose when he pulls it out. You know you can ask me any questions!

Lindsey said...

I just wanted to let you know I have a new blog address. Hope you have a great weekend!

http://alwayslindsey.blogspot.com/

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Aimee said...

Hey there... sorry I haven't stopped in for a while! Hope all is well. Also, I'm thinking of making my blog private. I'm getting a lot of weird stuff in my comments. I was wondering if you were getting the same. Loves...

Anonymous said...

Hi Kaci! This is Marta! It was great chatting with you today! So, whom ever is being a child on here can go ahead and knock it off now! The jig is up! You have any probs Kaci, you give me a call! Take care of yourself and my prayers are with Carson and yours....TTYL

Laura said...

Hope spring comes soon for you!

Come on over for some mom inspiration and encouragement -- I have four sons!

Teena in Toronto said...

Happy blogoversary :)