Thursday, March 26, 2009

Oh.....Where to start????

Hello everyone. I just wanted you to know that at the request of EVERYONE, I thought I better get on here and post before the search party comes out here.

I'm not sure where to start considering it has been over a month since I have posted. I would like to start off by saying THANK YOU for all of your e-mails, comments, and even phone calls. I have been trying to deal with a lot of info and every time I think things make sense, they don't.

I will start off with and update on Coltan. He is doing well in school. His report card looked great. Soccer for outdoors has already started and he is currently on two teams again. He practices every Monday and Thursday night. He is also in track in his middle school so he leaves for the bus every morning at 6:55 AM and gets home around 5:15PM. So as you can tell, he is usually very tired.

Cody has also started full swing of soccer. He also is on two teams (one of which him and Coltan play together on). So he practices Monday night with Coltan and then Tuesday, Wednesday, and Thursday on his other team. His practices are about 40 minutes away so we are going to start racking up the miles again on the car.

Coltan and Cody's Great Grandfather passed away on March 17th. That week was also spring break for the boys so thankfully they didn't have to miss any school. Chris and Jessica came and picked them up and left for Kentucky to arrange the funeral. Jessica said it was a very nice service and that a lot of the small town residence showed up to pay their respects. She also said she couldn't believe how well the boys were for that time while out of town.

Coltan and Cody's grandma and grandfather were not able to make the trip from Kansas City to Kentucky because Jerry (their grandfather) is still on hospice. He is still at home and has had problems with fluid in the lungs and stomach. He has been put on oxygen and has been having a decrease in appetite. The boys and I continue to pray everyday for Jerry to have fulfilled days and no pain.

Now on to Carson, well he still keeps me very, very busy!! He had an appointment with his GI Dr back in Feb and Dr K thought most of his problems with not eating was due to acid reflux. So he switched him from Prevacid to Nexium. We went back three weeks later and he was down another 8 ounces. So now we are giving him Nexium through his NG tube. We actually go back this Monday for a follow up but Dr K is pretty sure that he will end up with the Nissen. That is a patch that goes over the hole from his stomach to his esophagus. It will prevent the acid to go from his stomach upward causing all of his pain. So this will be another surgery that I'm really not looking forward to. I took him to the Dr and was really hoping that we would get the NG out and found out surgery was a very strong possibility. I did however talk to Pam from Rhett's blog and she said it was the best thing for him. So with that info, I'm keeping a positive attitude.

Carson also did the sleep study and actually passed!! They are looking at his iron level and testing him for lead. We went today and drew blood for it and would you believe my strong big boy was actually laughing with the nurses while they were poking him? I couldn't have been more proud!

We did the heart monitor for 30 days and wow....that was exhausting all in itself. The doctor contacted me several times for his bouts of bradycardia (meaning he has events where his heart beats to slow). He did order a pulseoximeter for my house for his nap times and sleeping at night. That alarm also goes off a lot as well. I'm not sure when we are getting rid of the monitor. Dr A has tossed around the possibility of giving him some oxygen at night but we haven't moved forward.

His sleeping hasn't gotten much better at night. We still go to sleep anywhere from 10:00PM -3:00AM, but on average around midnight. So I'm still trying to work on that with him as well.

Carson also still goes to Occupational therapy every week and has improved on so many of his motor skills. He still uses all of his sign language and Spanish and now talks in sentences with 7+ words in it. He is also amazing me by starting to write "some" letters and numbers. He is able to write A, C, H, I, L, O, T, U, V and write 1, 3, 4, and 0. He tries to draw cars and remembers to put on two wheels. He also tries to draw stick people and triangle and squares, and circles. He had an appointment the other day with the Behavioral Medicine for his eating and possible autism ( which he does not have) and the evaluator stated that he is one of the most intelligent two year old that doesn't have autism she has ever seen. She even went as far as saying that a lot of the things she tested him on, he was above a 4 year old. I'm not quite sure where he got those brains but hey, I'll take it!

I have a months worth of pictures to download and start posting and will get to that hopefully soon.

Cody has a tournament this weekend in Springfield, Ill and according to the radar, they are expecting rain on Friday, Saturday, and Snow on Sunday. So I'm thinking there is a very good chance that Carson and I will be spending most of our weekend inside the hotel. My plan is to spend some time downloading some pictures of Coltan, Cody, and Carson and try to catch up on EVERY ONE'S blogs. I know that I have about a month to go back on but if I take a few a day I'm hoping to have everyone caught up by Monday. Coltan will stay in town. He has three soccer games this weekend as well.

I just wanted to say thanks again to everyone who has tried to communicate with me and make sure we are all okay. I will also try to update later some of my life issues. I knew this post would be very long so I was thinking just update the boys today and start with me later this weekend??? I feel like my long break is now over and I'm feeling like blogging again and following along with everyone else. You all have been such a huge support system for me and there had been so many nights that I wanted to jump on and vent but for one reason or another just thought it would be best to be silent. Overall I'm getting stronger, healthier, and happier everyday. I just had to clear my head and make sure I was keeping focused on staying away from certain negative behaviors.

Hope everyone has a wonderful Friday and a great start to the weekend.

26 comments:

Lacey said...

Oh i missed you so much. I almost called, but when you didn't answer emails, I decided there was a reason you weren't answering. Its funny that the pulse ox goes off at night but he passed his sleep study, his oxygen should have been dropping then to. Jax has actually had a nissen twice. It is a huge help. He stopped breathing in Walmart because his nissen had come undone and he refluxed and aspirated. They can do the surgery laproscopic so there will be no big scar. It will probably really help.
Super big hugs from me and Jax, oh and by the way, I was almost ready to send the search team out.

Carey said...

Glad you're back! Wow, I'm so impressed at your smart little boy. How fabulous is he?!!!

I'm going to be in Olathe for training all next week. I thought about posting on my blog for a blog get together for all the bloggers in KC ... well bloggers that read about us ... you know what I mean!

Email me if you're interested! careydreambig at gmail dot com

Mike and Gail said...

Glad to see you back in the game. :D

Blessings,
Gail

Lacia said...

So glad to see you back posting. I was getting worried. But I thought maybe your internet was down or something, trying to stay positive.

Kyler's Mom said...

Good to hear from you!!!

Lindsey said...

Welcome back! I missed reading your posts. I'm glad to hear your family is doing so well. You had me worried! I will continue praying for family. <3

kristi said...

Howdy! I was in here yesterday checking on you. Glad to hear you are alive and kicking!

Carolina Girl said...

Woo hoo you're back! Mental note: call off the search party! :) Glad all is well...although, sorry about their great grandfather. Prayers your way!

Angie said...

I missed you! I am so glad you are back and starting to feel a little better. Prayers still headed your way, but glad to see you back! You had me worried. Your kids are amazing-be very proud of them!!!

Look forward to seeing you back more often!

Kaci said...

Whew - glad you are back. I was worried. Sorry to hear about the boys' great grandfather.

You must be so proud of all your boys! But I don't know how you keep up with those schedules!

Spaghetti said...

I am so glad that you are o.k. I was starting to worry. We will keep you and the boys and extended family in our prayers. Life just seems to be getting everyone down lately but on the bright side, it is officially spring! I know that there is nothing that I can say to let you know how much we all missed you or let you know how much we all care. I only pray that God lets you know in some small way and will lift you up and hopefully the worst is over for now.

Pam said...

Awww....I have missed you my friend!! We are crossing our fingers and toes that things settle down for you soon.

Is there anything I can do for you? You know I am just a phone call away.

I don't have your number anymore because I had it saved to my phone, then Rhett broke my phone so I had to get a new one. I thought it was on the SIM card but, well, you know how it is when I think.

So call me okay? Sending lots of hugs, and I am soooo glad you're back!!

mommy to Kaden, Brody and angel Ava said...

Yay!!! I am glad to hear from you. You had me worried. I wanted to e-mail you but I guess I never saved your e-mail in my contacts and just e-mailed you by RE or something because I couldn't find it. It sounds like you have kept busy (as you seem to always do). Sounds like the boys are doing well too. I hope you never take that long of a break again, but I understand why you might have needed to do that. I go through my moments as well were I just don't feel like either commenting, posting or reading.

I too wish I would have known you were up there on Monday. It sucks to know that we were actually there at the same time and still didn't get a chance to actually meet face to face. One day...

Well girly, I hope to hear more soon.

Loves

Wendy said...

Good to read an update post. Sorry life has been throwing you lots of curveballs lately. I'll continue to pray for you and your lovely boys.

Tracey said...

Good to see you doing okay! Glad to have you back.

Shari said...

Kaci: I have missed you bunches. I did try and call you at home, but there were no answers. I didn't want to bother you because I knew you were dealing with so much so I didn't call your cell phone. I didn't want to intrude as I know life has been hectic and tough for you. Know I continue to pray daily for you and your boys and I am happy to see a blog post. You just take your sweet time darlin' and don't worry about how much you need to post or catching up with others. Hang in there, sweetie! We here to support you as much as we can!

lonestar said...

It's so good to hear from you! Sorry to hear about the boys' great grandfather though.

Hopefully the surgery will be just what Carson needs, will continue to keep ya'll in my thoughts & prayers. (((hugs)))

Carey said...

Ok, I can't find your email! email me, I wanted to see if you were free tomorrow or Thursday? Carey

Julie said...

Glad to hear that everyone is doing so well. I'm sorry about losing your loved one though. That's so cool about Carson writing letters and numbers. How fun!

GutsyWriter said...

I was worried about you too. See isn't it nice we all think about each other.

Carey said...

Hey girl, I emailed you, maybe I have the wrong address? Please email me tonight! Hopefully we're meeting up later on tonight (Thursday). thanks!

careydreambig @ gmail dot com

Rachel said...

Hope you are doing ok...I so miss my friend. I tried to call and email, but no responses. I hate it that you are so absent from me/us lately.

Try to get in touch!!

Love ya and miss ya!

Rachel

Melissa said...

I'm so glad to see you posting! I was starting to get worried and praying a lot for you- although I can imagine you have a LOT keeping you busy. :) So wonderful to hear from you. We have some news of our own, by the way, keeping me busy (well keeping me throwing up a lot)- we're expecting another little one. Yeah, crazy huh! I wanted to tell you, I am so behind on our blog. Hopefully soon I will announce on there, but I've announced it on facebook already so a lot of people know. First week of Oct- planned C section- they don't want me to go into labor (after everything last time). Anyway, sorry for rambling- you know how we always communicate via our blogs. :) SO GLAD to hear from you and that you're doing okay. You had me worried. Much love to you guys!! :)

Teena in Toronto said...

That's a lotta news :)

Happy blogoversary!

kristi said...

Hope you all had a great Easter!

Rachel said...

Still waiting to see pictures from the birthday party. I'd love to see the one with Cody and Melana. I bet that one is just priceless.

Hope you guys had a good Easter.

Rach